A Heartfelt Thank You

It was May when a friend noticed a post about a new charity called SuperTroop. It looked like an amazing organisation but we imagined that Georgie (our 13 year old daughter who has Down’s Syndrome) would be lucky just to be considered for such a wonderful opportunity and never thought that we would get the quick and decisive response that we did.

 

I emailed for some details and filled in an initial application form and, utterly amazingly, we were told that Georgie had a place on the first ever Edinburgh SuperTroop holiday.

 

A year before we wouldn’t have even contemplated her going away for a week by herself (she’d only ever been on one sleepover away from her parents). However, her independence had developed a lot recently and the timing was perfect. We watched some of the Oundle videos and Georgie was fascinated by them and very enthusiastic. She is sociable and full of energy and fun and we knew the week would be a tremendous boost to her confidence and independence. We were sure she would love making new friends and spending time doing different activities with them.

 

As we celebrated Georgie’s good luck we also realised our own good fortune. As a family we suddenly had a week of freedom to do things without the constraints that we felt when Georgie would have found them difficult. I’d wanted to take Georgie’s big sister, Charlie, to London for years but neither leaving Georgie out or trailing her around a bustling city seemed attractive options. Now we could have a guilt-free trip - and we did, and it was wonderful.

 

I felt unusually organised and quite calm in the run up to the week, bolstered by Sue’s detailed ‘What to Pack’ and ‘Holiday Makers’ Guide’, and distracted by end of term events at school. I did feel a sudden thump of panic as we approached Dalmeny but the festival atmosphere, the smiles of the helpers, the warm welcome and the reassurance of the calm, professional staff, combined with Georgie’s immediate grin and delight, meant that I could suppress my qualms and save the huge sigh (and a few tears) for when I got back in the car, just fifteen minutes later.

 

The first twenty-four hours apart were the hardest and we hung on every text and Facebook photo. However, we were determined to make the most of our precious week and we were busy which helped distract us. When the dreaded phone call, saying that Georgie wasn’t well, came through I was in the bustling foyer of the Globe Theatre, hundreds of miles away. The drop-everything-and-go reflex just wasn’t possible and, seconds into the phone call, the reassuring tones of the nurse meant that I knew Georgie was being wonderfully looked after. She was surrounded by attentive and caring friends and, no doubt, lapping up the attention. A day later her sickness had passed, and she was back in party mode and, amazingly, this had all happened without us being there. The fact that the team coped so well and that a blip in Georgie’s health was dealt with so smoothly meant a huge amount.

 

We really don’t know where to start thanking Sue and SuperTroop. Georgie had such a fantastic week. It did (and still does) feel like a really life-changing experience. Getting her prepared for a week away for us meant certain changes (which were all good} and a move to more independence. We all now know what being apart feels like and that it is possible - and a positive thing for all of us. The photos that came through on Facebook and Instagram were full of Georgie’s energy and smiles and were both reassuring and joyous to see. We’re really looking forward to the video coming out and that will give another lease of life to her memories and her enthusiasm to communicate her adventures. After coming home, we saw some sadness at bedtime when she was missing her new friends, but in general she was buoyed with such new confidence and independence.

 

Sue has done a really wonderful thing setting up this charity. As teachers we can appreciate what an eye-opening and valuable experience this was for the student helpers. They all seemed so full of enthusiasm, care and commitment: it was fantastic to see! Whatever training they’d been given must been pitched just right.

 

We don’t underestimate the enormous efforts that went into making the week such a fantastic success and it’s impossible to adequately express our thanks to the helpers and group-leaders, the team and the fund-raisers.

 

The possibility that this might happen again next year, giving Georgie another fantastic week, is incredible. For her to have the chance to renew friendships and delight in some familiar experiences (and some new ones) will build her confidence and communication skills yet further…and with bucketloads of fun and joy thrown in!

 

We think SuperTroop seems to be that rare experience where everyone wins.

 

THANK YOU!

 

Ann and Brendan Butler

a shameless appeal for money!

This weekend is finally the digital launch of our wee charity.  It is SO EXCITING! The other founders and I have been slogging away behind the scenes for about 18 months getting the charity off the ground.  I can't WAIT to share this with our friends, family and local community.

We've registered with OSCR, opened a bank account (more difficult than you might expect) and recruited a full board of trustees who have met three times so far. We've also identified more than half of the senior team, and are beginning the process of finding helpers and group leaders for the holiday! This autumn we will start reaching out to the community to identify the lucky 16 kids who will be the first to come to a SuperTroop week. It has been hard work, and apart from anything else, it'll be so nice to have some feedback when we 'go public'.

Our Care Inspectorate registration is also in progress.  This is pretty gruelling.  We will be registering under the same category as permanent residential homes for children with disabilities.  These places have full time staff and significant resources to allow them to pull together all the paperwork they need to demonstrate that they are providing best practice. We won't shirk our duty to meet the highest standards for our holiday makers, and we're glad to have the opportunity to show it. The biggest obstacle though is the fee.  Despite running for only one week of the year* we need to pay the same as a 52-week business would.

This brings me back to the title of this piece.  We're doing all we can to build our charity from zero.  But there's one thing we can't do alone - raise the money we need. Our volunteers have already spent more than £1500 of their own money getting us off the ground, and the CI fee we need to pay at the end of the summer is over £4000. Please please PLEASE, if you can spare a contribution of any amount - or even become that precious thing, a regular donor - make a donation.

If you can't afford to make a financial contribution, please check out here how you can support us in other ways. Could you consider doing a sponsored activity or event on our behalf? We'd love to hear your ideas and can give you all the info and help you need. And please, share this page and give other people the chance to hear about and support our work!  thank you!

* in summer 2018 we will run our first ever holiday in Edinburgh.  However our goal is to expand as soon as we safely can, so we can offer more holidays to more holiday-makers, including for adults.

We exist!

It's hard to post exciting news here at the moment.  The business of setting up a charity from scratch is pretty dry, it must be admitted. But now that we have our official registration with OSCR and this snazzy website, I guess that means we exist. Gosh.

Now to get on with the business of planning our first holiday.  We'll come back here soon to post some info about how you can help with that...